Saturday, December 13, 2014

Pills versus MJ

Here is an email my brother just sent me:

" i was at a art gallery today with people and we walked up to a church made out of prescription pill bottles, it was large
so we are being told about this piece, and the guy says the artist has chrons disease and this is his bottles from years of suffering,
they noticed my face changed, so i tried to explain my sister has almost died from chrons and i walked away from everyone crying, i thought you should know this story,"

Here is the picture: 


I started taking meds since preteen years. These meds have cause comorbidities such as arthralgias, osteopenia and other tropic manifestations. I was taking over 30 pills a day, 8 hour intravenous infusions etc. Now that I have become an adult & have added my own meds to my regimen (MJ) enabling me to get off all of my prescription pills except Humira which I take one shot every other week. I would like to try and stop taking the shot but my fear of flare up is too frightening for me right now as I am in remission. Recently I had a surgery and the doctors prescribed Hydrocodone. I took some but the nausea and vomiting caused my inside to turn because of the unstoppable muscle contractions that accompanied the vomiting. I replaced my pain meds with MJ and not only do they decrease the pain but also the nausea so I can eat ;-) 

Unfortunately I live in Florida aka "fear" because MJ is not legal-therefore I cannot treat myself regularly and still have many issues because the inconsistencies of my routine due to the legalities and the process needed to obtain the meds. I am also trying to become a professional so it is frowned upon and you could loose EVERYTHING with a stupid urine test...until its legal...makes so much sense-so much that I never wanted to share this amazing story because my church of pill bottles has become a garden of health and wellness that could imprison me because of the politics. 

Why wouldn't everyone want to support the miracle drug when it is proven to help so many. Oh ya, a caregiver or child could steal the meds and not its regulated enough! Are you f$ck"ng kidding me! U people with those dumb excuses. Any Rx can be stolen and every Rx could use more regulation. That will never end. What will is the endless Rx cycle of prescription, to more prescription for the side affects of the first prescription! It ridiculous and I wanted to speak up because if I don't who will. I still get calls from the pill manufactures wanted to document all the new side effects I experience because any drug that has ever been approved has a stage of approval that never ends because no one knows everything about everything-it is called " practicing medicine,  not perfect medicine" and therefore ongoing studies are needed to see what the effects of all these pills are. If you do not have a chronic illness then you do not know the tortures of being a human guinea pig-you will never know. Just try to step outside the box a little bit. 

I am proud of myself for having the courage to speak up and type this blog. I am not currently medicating with MJ regularly because I could be kicked out of school, arrested or be looked down upon. Having a beautiful family and a son I care more about then my side effects from the Rx is why I am holding off until the hopeful legalization. I just wanted to share my experience so everyone can get together and vote to approval this medicine next time around :-) Please, put yourself in other people shoes-visit those who actually benefit from the natural medicine vs. those wasting away from side effect after side affect of the pill mills. IT IS NOT FAIR OUR LIVES ARE IN YOUR CONTROL BUT THEY ARE! HELP LEGALIZE MJ AND END THIS HORRIBLE PILL CYCLE! END IT! 

Monday, January 27, 2014

Symptom Free on Humira Once Again...

Hello All. I just wanted to report on my status after starting Humira 4 wks ago. I have been symptom free and started gaining back some very needed weight!!

Prior to the injections :
I was so bad I could not walk and had to use an electric cart and handicap sticker when going out and about! I had fire in my stomach and a constant torture of someone ringing out my intestines! That is what it felt like a long with embarrassing accidents and content bowel movements: none solid. I was throwing up every morning and I losses over 20lbs.

Weighing the pros and cons:
I had a lot of side effects from the Humira such a psoriasis, double vision, EXTREME photosensitivity: I could not open my eyes outside without sunglasses and I felt like a vampire burning in the daylight! Literally my skin would burn off like a hot iron touched me. I was being followed by Abbott lab. due to all these side effects and felt it was my duty for my family and I for me to try a holistic all natural method. I went gluten free even!! However 6 months off of Humira (as my doc told me) I was worse then I started and gladly gave my self the booster shots!

In life you have to weigh the pros and cons. I would rather have those side effects then the inability to play with my 6 year old son and enjoy life on a daily basis. Its about quality and not quantity to I had to stop worrying about the million side effects that come in the pamphlet with Humira and just be happy it works for me